Clinical trial

National Registry of Rare Kidney Diseases

NCT06065852

StatusRECRUITING

Study typeOBSERVATIONAL

Start date2009-11-06

PhaseN/A

Study timeline

Study start (actual)2009-11-06Date precision: day

Registry last updated2023-10-04

Observed by CureCurrent2026-10-07

Recorded dates are source observations, not predictions. Missing milestones are not estimated.

Conditions

Adenine Phosphoribosyltransferase Deficiencyunresolved

AH Amyloidosisunresolved

AHL Amyloidosisunresolved

AL Amyloidosisunresolved

Alport Syndromeunresolved

Atypical Hemolytic Uremic Syndromeunresolved

Autoimmune Distal Renal Tubular Acidosisunresolved

Autosomal Recessive Proximal Renal Tubular Acidosisunresolved

Autosomal Recessive Distal Renal Tubular Acidosisunresolved

Autosomal Dominant Polycystic Kidney Diseaseunresolved

Autosomal Recessive Polycystic Kidney Diseaseunresolved

Bartter Syndromeunresolved

BK Nephropathyunresolved

C3 Glomerulopathy With Monoclonal Gammopathyunresolved

C3 Glomerulopathyunresolved

Calciphylaxisunresolved

Crystalglobulinaemiaunresolved

Crystal-storing Histiocytosisunresolved

Cystinosisunresolved

Cystinuriaunresolved

Dense Deposit Diseaseunresolved

Dent Diseaseunresolved

Denys-Drash Syndromeunresolved

Dominant Hypophosphataemia With Nephrolithiasis and/or Osteoporosisunresolved

Drug Induced Fanconi Syndromeunresolved

Drug-Induced Hypomagnesemiaunresolved

Drug-Induced Nephrogenic Diabetes Insipidusunresolved

Epilepsy, Ataxia, Sensorineural Deafness and Tubulopathyunresolved

Fabry Diseaseunresolved

Familial Hypomagnesemia With Hypercalciuria and Nephrocalcinosisunresolved

Familial Primary Hypomagnesemia With Hypocalcuriaunresolved

Familial Primary Hypomagnesaemia With Normocalciuriaunresolved

Familial Renal Glucosuriaunresolved

Fanconi Renotubular Syndrome 1unresolved

Fanconi Renotubular Syndrome 2unresolved

Fanconi Renotubular Syndrome 3unresolved

Fibrillary Glomerulonephritisunresolved

Fibromuscular Dysplasiaunresolved

Focal Segmental Glomerulosclerosisunresolved

Generalised Pseudohypoaldosteronism Type 1unresolved

Gitelman Syndromeunresolved

Heavy-Metal-Induced Fanconi Syndromeunresolved

Hepatocyte Nuclear Factor 1-Beta-Associated Monogenic Diabetesunresolved

Hereditary Renal Hypouricemiaunresolved

Hereditary Hypophosphatemic Rickets With Hypercalciuriaunresolved

Hyperuricaemic Nephropathyunresolved

IgA Nephropathyunresolved

Immunotactoid Glomerulonephritis With Organised Microtubular Mononoclonal Immunoglobulin Depositsunresolved

Inherited Renal Cancer Syndromesunresolved

Intracapillary Monoclonal IgM Without Cryoglobulinunresolved

Intraglomerular/Capillary Lymphoma/Leukaemiaunresolved

Isolated Autosomal Dominant Hypomagnesaemia Glaudemans Typeunresolved

Liddle Syndromeunresolved

Light Chain Cast Nephropathyunresolved

Light Chain Proximal Tubulopathy Without Crystalsunresolved

Light Chain Proximal Tubulopathy With Crystalsunresolved

Lowe Syndromeunresolved

Membranous Nephropathyunresolved

Membranoproliferative Glomerulonephritisunresolved

Medullary Cystic Kidney Diseaseunresolved

Minimal Change Nephropathyunresolved

Mitochondrial Disease Of The Kidneyunresolved

Monoclonal Immunoglobulin Deposition Diseaseunresolved

Nail Patella Syndromeunresolved

Nephrogenic Diabetes Insipidusunresolved

Nephrogenic Syndrome of Inappropriate Antidiuresisunresolved

Nephronophthisisunresolved

Primary Hypomagnesemia With Secondary Hypocalcemiaunresolved

Primary Hyperoxaluriaunresolved

Proliferative Glomerulonephritis With Monoclonal IgG Depositsunresolved

Proximal Tubulopathy Without Crystalsunresolved

Pseudohypoaldosteronism Type 1, 2A-2Eunresolved

Pure Red Cell Aplasiaunresolved

Retroperitoneal Fibrosisunresolved

Sickle Cell Nephropathyunresolved

Shiga Toxin Associated Haemolytic Uraemic Syndromeunresolved

Steroid Resistant Nephrotic Syndromeunresolved

Steroid-Sensitive Nephrotic Syndromeunresolved

Thin Basement Membrane Nephropathyunresolved

Thrombotic Microangiopathy With Monoclonal Gammopathyunresolved

Type 1 Cryoglobulinaemic Glomerulonephritisunresolved

Tuberous Sclerosisunresolved

Unclassified Monoclonal Gammopathy Of Renal Significanceunresolved

Vasculitisunresolved

Interventions

Sponsors & collaborators

UK Kidney Associationlead sponsor

Registry source

Open the source record to verify current eligibility, contacts, locations and registry updates.

Open NCT06065852 on ClinicalTrials.gov ↗

Registry-derived research relationships: ClinicalTrials.gov. Raw condition and intervention labels remain distinct from canonical MONDO/RxNorm entities unless separately normalized.