Clinical trial

TSC Biosample Repository and Natural History Database

NCT05676099

StatusRECRUITING

Study typeOBSERVATIONAL

Start date2016-01-01

PhaseN/A

Study timeline

Study start (actual)2016-01-01Date precision: month

Registry last updated2026-06-24

Observed by CureCurrent2026-10-07

Recorded dates are source observations, not predictions. Missing milestones are not estimated.

Conditions

Tuberous Sclerosisunresolved

Lymphangioleiomyomatosisunresolved

Interventions

PhlebotomyPROCEDURE

Buccal (cheek) swabPROCEDURE

Genetic TestingGENETIC

Tissue donation after routine clinical procedureOTHER

Sponsors & collaborators

National Tuberous Sclerosis Associationlead sponsor

Mapped research locations

HoustonTexas, United States2 BostonMassachusetts, United States2 New YorkNew York, United States1 ChicagoIllinois, United States1 Los AngelesCalifornia, United States1 PhiladelphiaPennsylvania, United States1 DallasTexas, United States1 St LouisMissouri, United States1 MiamiFlorida, United States1 ClevelandOhio, United States1 BirminghamAlabama, United States1 CincinnatiOhio, United States1

Registry source

Open the source record to verify current eligibility, contacts, locations and registry updates.

Open NCT05676099 on ClinicalTrials.gov ↗

Registry-derived research relationships: ClinicalTrials.gov. Raw condition and intervention labels remain distinct from canonical MONDO/RxNorm entities unless separately normalized.